BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Monday, August 1, 2011

New home

Looks really nice, but we're sharing a room with a loud spanish family that has a newborn with jaundice. There's no sleeping at this point. Tucker seems to be comfortable. He's been having irregular breathing and his eyes were acting different. We requested the charge nurse, then the doctor on duty and then the neuro team to look at him. He has never acted this way since the 5 days we've been here. Everyone is not too concerned but they said we all need to keep an eye on it. We will monitor tonight and I'll get back to you in the morning. Now I have to go tell the spanish family to zip it. Good night.
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1 comment:

  1. Heidi SkinnerAugust 2, 2011 at 10:02 AM

    You go tell them where to go, Ricky!! I just have to say that you two (THREE!) are SO strong and so inspiring! Plus, I think it's adorable that YOU'RE doing the blog, not Liane! :) You're already a great dad! Congratulations!

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