BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Tuesday, August 2, 2011

Head update

When Tucker got his external shunt removed yesterday, his head circumference was 32.5cm. They measure it at least twice a day for growth. It obviously is expected to grow some as he grows. When it grows around 2cm within a couple of days, it means the fluid is contributing to that and he will need to get his shunt operation. His head measured 32.8cm by the neuro team around 7am this morning.  This is the most important thing to monitor and I will keep you updated.
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