BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Sunday, July 31, 2011

Waiting Game

7/27/11 11:00am-Nurses inform me that they may beable to squeeze Tucker in for surgery this afternoon or evening but was originally planned for tomorrow at 2:30pm. I was very excited because the sooner they can close his hole, obviously the better. I waited and waited and finally around 7:00pm they informed me that they had an emergency open heart surgery on a newborn and that Tucker would wait until the next day at 8:00am. Tucker seemed comfortable, they weren't worried, so neither was I. I was in and out of Tucker's room a few times throughout the night, patients can't sleep in the NICU, so I can only sit and visit with him.

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