Update

Last night went well. I did all the feedings! 9pm, 12, 3 and 6am! His breathing was stable and he's improving on breathing drinking and swallowing at the same time. He can drink about half a bottle, then he gets the rest through his feeding tube. I'm hoping he can do a whole bottle by the end of the week.  We noticed some fluid that came out of his lesion on his lower back. The neuro team and plastics team came and looked at it this morning and said to keep a close eye on it and inform them if it persists. It's normal for some fluid to come out, but not to be continuous. Tucker got a cranial ultrasound today and we're waiting for the results. The dr said they can feel a little more fluid build up in his fontanels. His head circumference is at 32.9cm's, .1 up from yesterday.