BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Tuesday, August 2, 2011

Hopefully not a repeat of last night...

Tucker got his cathetar taken out this evening. Now we will cathetarize him two to three times a day. We just assisted the nurse doing it for the firrst time tonight. Looks extremely painful but it didn't seem to bother Tucker at all. I fed Tucker all by myself for the first time tonight and he did really well. He didn't burp for me though. He cried and farted about 6 times. I think he was just gassy. His oxygen saturation is acting up again so we're pretty nervous that he's gonna have breathing issues again. He was fine all day so I have my fingers crossed. Til tomorrow...
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