Tucker Alan Schreckenghost was born at 8:02am on July 27, 2011. Tucker was born with Spina Bifida (S2) and has already shown us how strong of a person he is. My goal is to tell his story to friends and family and share his journey through this unpredictable life. To learn his full story, start from the first posting. Enjoy!
BIG DAYS
12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
Saturday, August 13, 2011
Bladder control
I've mentioned before that Tucker has been peeing on his own in his diapers. Well he's still doing it, sometimes lots, sometimes a little. Either way, he has regained some ability to pressure some out. Before his closure surgery, he was peeing on his own. During and after surgery they put in a folie catheter that let him go all the time. After they took the folie out, he was not peeing on his own for several days. Well, we've been noticing pee in his diapers for about 5 days now and are hoping he is regaining some of his bladder control. Unfortunately, our urology visit isn't until the first week of September. I'm very interested to see what they have to say. Again, about 95% of people with sb have bladder dysfunction of some level, so this doesn't surprise us but we're hoping for the best and this is a good sign.
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Sounds like a good start :)
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