BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Sunday, January 15, 2012

Tucker's latest update

Lot's of friends and family are asking about our little man and his development. He still has pt every Wednesday morning and he still has his normal pediatrician and clinic appointments at Children's. So about 1-2 times a month he sees his doc's. At his latest appointments with his pediatrician Dr. Gould and his neuro development Dr. Walker, he is in the 5-10th percentile for his head size, length, and weight, which is expected. His motor skills are a little behind but not by much. His ability to hold his head up, he's still a little shaky, ability to grab things, hold a bottle, etc. His social skills are average, which is great! Very smiley, cooing, laughing, and playing. His daily routine is normal for a baby his age; eats, sleeps, plays, poops. Grandma Lee and Memere come over 3-4 times a week and watch him while we work. I'm usually home around 4pm and take over. His bedtime is around 6-7pm depending on when he takes his last bottle. He really will only let me put him to bed without a fight. I wrap him up super tight and walk him to sleep. He's sleeping great! From about 7pm-6am with 1-2 bottles in between.  Makes our lives a lot better.

1 comment:

  1. Glad he's doing so great!! What a little blessing :). My babies always liked to be walked to sleep too. I never minded, it's nice having that peaceful time with them. I wish they would still let me sometimes :)

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