October 4th scare

On October 3rd, Liane took Tucker to Children's hospital to get all his check ups from all teams; neurosurge, urodynamics, neuro development, etc. The urodynamics results were great. Tucker has some control over his bladder, a bit uncordinated at this point, but he does have some muscle control. No more cathing!!! The neuro team adjusted his shunt to allow more pressure in his head by reducing the amount of fluid being released from his head through his shunt, and into his belly. They said this would be the level they most likely will keep it at for a long time. They told us that if he has any changes in behavior to bring him back in. Well, that night Tucker was refusing to eat, screaming when he was awake, then sleeping more than he's ever slept before. Over night when feeding him, he would eat an ounce or 2 and then threw it all up. We knew something wasn't right. So at 4am we made the drive to Children's and checked in to the ER. After all the standard check ups, the on-call neuro duffus came to take a look at him. He checked the pressure on his shunt and it was still at the same, 1.5. He then told us that we wouldn't see any changes from a shunt change this soon. When the REAL neuro team explained to us that it could be immediate and to bring him in right when you see any changes. So, they checked us into a room for the day and waited for the real neuro team to look at him. Tucker got better gradually through the day, and they finally let us leave around 8pm. The neuro team said his symptoms were most likely from his body getting used to dealing with more pressure in his head. Long day but he was safe so we were more than happy. You parents out there know how sad it is when you can't help your child. It sucks. We haven't had anything remotely close to that night. He's been a freakin' Rock Star.