BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Friday, August 19, 2011

Great Update

Yesterday morning we had an appointment with our pediatrician. The main point of the visit was to make sure Tucker was gaining weight, approximately an ounce a day. Well in one week he has gained 8 oz, from 6lb5oz to 6lb13oz in 7 days. 
Today, we spent the morning at Children's hospital. We followed up with the neurosurgery and plastic surgery. They both were very pleased with the way Tucker is healing. His shunt seems operable and his back wound is healing just fine. They have cleared him to lay on his back for short periods of time now, 1-2 hours at a time. Also, he can now ride in a car seat and doesn't have to ride in the stupid car bed they gave us that's very outdated. The biggest news of the day came from urology. We discussed with them how Tucker has been voiding urine on his own. So now we only have to cath him twice a day and document the amount! This is a huge relief. We've been cathing him every 3 hours around the clock! It all can change, but this definitely is a good sign for now for our little guy. I also hope this will mean a little bit more sleep since I go back to work on Monday.

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