BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Sunday, July 31, 2011

Uneventful is good

7/30/11-Pretty much all day Tucker slept and ate.  He still doesn't get the swallowing and breathing at the same time thiing, but at least he's trying. It wsa great  to have my wife back with us. We hung out in his room, had breakfast lunch and dinner together and, it was family time for us. Every 2-3 hours overnight, Liane was pumping and I was the milk man. I would take the package down to the NICU to the nurse so she could store the milk for when little guy was ready to eat. Oh, and it was my nephew Tovi's birthday, Happy 2nd Birthday Big Boy!!!
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