Tucker Alan Schreckenghost was born at 8:02am on July 27, 2011. Tucker was born with Spina Bifida (S2) and has already shown us how strong of a person he is. My goal is to tell his story to friends and family and share his journey through this unpredictable life. To learn his full story, start from the first posting. Enjoy!
BIG DAYS
12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
Monday, November 21, 2011
Shunt Revision
11/19/11-Tucker was fussy for almost a week. Screaming for hours at a time. We didn't see any signs of shunt failure; vomiting, lethargic, "sunset" eyes. Which led us to believe his stomach was just bothering him. We tried everything for his belly and nothing helped. Saturday afternoon we brought Tucker in. After going through all the normal baby tests but no red flags, they did a ct scan to check the fluid in his head. His ventricles were larger than normal and Dr. Braud (who did his spine closure) assumed there was a shunt malfunction. Sunday morning 11/20/11, Tucker when into surgery at 830am for a shunt revision. After about an hour, the surgery was over and Dr. Braud came to speak to us. He showed us in a plastic ziploc bag the part of the shunt that wasn't working. It was the tube that goes into his brain for the fluid to enter the shunt and down into his belly. The little holes where the fluid entered were being covered up by scar tissue causing it to block the fluid from his brain into the shunt. We stayed one more night for recovery and observation. We are home now and he seems to be doing better. He's taking tylenol every 4 hours and it seems to be helping. So happy we took him in.
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Tucker seems like he is going to be a very strong person already!... Glad he is all right. My prayers go out to you three. You are very special people who have been intrusted by God to take care of this little one. Couldn't have picked to loving and special people!.. I love you and keep posting!...Auntie Vicki
ReplyDeleteI will be coming down to Seattle University of Washington sometime in January to meet with the liver doctors there. Maybe we can meet up somewhere. All depends on what they want to do. I'll let you know more when the time is nearer. hugs and kisses to you three!