Tucker Alan Schreckenghost was born at 8:02am on July 27, 2011. Tucker was born with Spina Bifida (S2) and has already shown us how strong of a person he is. My goal is to tell his story to friends and family and share his journey through this unpredictable life. To learn his full story, start from the first posting. Enjoy!
BIG DAYS
12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
Sunday, September 11, 2011
Eating Troubles
Tucker has been crying for about a week from last Saturday to this last Thursday, about 6 days or so. He's been crying non stop, not sleeping, crying through bottles, nothing will work. We got some different formulas and he did the same thing with the first couple types. Finally he calmed down once on the soy formula. We're hoping he's not lactose intolerant. We'll discuss with our pediatrician next time we see him.
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Have you checked his shunt?
ReplyDeleteWe had this problem too, switched her formula so much but it only made it worse, I didn't know at the time, but it upsets their tummies more when you switch their food so much. She also had a blocked shunt though, so if his fonatelle is up, you might want to get it double checked. Hope he feels better soon :)
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