BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Thursday, August 4, 2011

Update

Tuckers cranial ultrasound came back normal. A little leakage out of his back but nothing too significant. He's been being catheterized every 2 hours and today they have moved him to every 3 hours. This will help him get more sleep as well as us. Mostly mommy, not sure how she does it. He's pooping normal and just a little bit of pee is coming out on his own. His weight is up to 6lbs even. He's eating much better with a bottle. The sooner he can eat the whole bottle, the sooner we can take his feeding tube out.  The occupational therapist/physical therapist came by this afternoon. She gave us exercises for his legs to do 3 times a day. She also is ready for the next step of feeding, which is giving him a bottle while holding him.
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