BIG DAYS

12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.

Tuesday, August 2, 2011

Long night

Where do I start? First of all the neighbors were loud until about 11pm, I had to shhh them and Liane told me to stop. They were on the phone speaking in Spanish for like 30 minutes. Then little man kept up the irregular breathing which was not nice to see, it really kept us up just watching him. Then after 11pm he started crying and no one could figure out why. When he would fall asleep his oxygen saturation level was very low, confirming that he wasn't breathing right. Freaked us out. A few times it went critical and we had to reposition him and kind of wake him up. And most scary of all, one time we had to get him oxygen to assist him to breath. This went on til about 4am. But after he got the oxygen, he seemed to do much better. I got 4-5 hours of sleep and Liane only about 2. She said she just couldn't sleep. She really didn't leave his bed side. I felt really bad for her.

1 comment:

  1. He's blessed to have you both there with him. It will help make him stronger and you will be out before you know it :)

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