Tucker Alan Schreckenghost was born at 8:02am on July 27, 2011. Tucker was born with Spina Bifida (S2) and has already shown us how strong of a person he is. My goal is to tell his story to friends and family and share his journey through this unpredictable life. To learn his full story, start from the first posting. Enjoy!
BIG DAYS
12/24/2010-We're pregnant!
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
3/23/2011-Tuckers a boy. We also find out he has Myelomeningocele. Which is a defect where the spinal cord doesn't fully develop. Essentially the spinal cord has an opening. This also causes hydrocephalus; spinal fluid builds up in the ventricals (in the head) and needs a shunt put into to circulate back into the body.
3/28/11-Met with neurologist to talk about severity of Tucker's defect. It was hell waiting 5 days. After having a good talk, Liane and I went and did some baby shoppiing. It was a great day of relief.
7/27/11-C-section date 730am. Surgery to close his spine to come within 48hrs.
7/28/11-Surgery to close spine.
Monday, August 1, 2011
External shunt update
A neuro nurse practitionar just came and took a look at little man. She was very pleased with his status. Fluid has not drained out of his head since 10am Saturday morning.  She thinks that they will take out the shunt later today and monitor his head through ultrasound, measurement, and his overall comfort level. She attempted to draw some CSF fluid, which is the spinal fluid in his head, but she couldn't get enough for a sample. Awesome! That means it's going throughout his body on his own, not needing the shunt at this time. Babies with sb have an 80% chance of needing a permanent shunt at some point in their life. It's usually within the first 2 years. Whether he gets it now or not, we will continue to monitor it his whole life. But the good news now, it is not building in his head and that he is comfortable.   Love you little man!
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